All about Violet

Violet is now 9 months old. I can't believe it. It has flown by. Some of you may know that Violet has had some health problems since she was about 4 months old. She was having seizures that caused her to jerk her head forward, fling her arms up, and her whole body would tense up. These episodes are very upsetting to her. After seeing a neurologist, having several EEG's, and an MRI we got no real answers. We were seeing a neurologist that thought it might be infantile spasms which is a type of epilepsy that causes major delays and often turns into a different type of epilepsy when they are older. But with Violet her development is normal and her EEG did not show evidence of infantile spasms. After 5 months of trying different medications that worked for a little while and then stopped we decided to get another opinion about her condition.

We went down to Salt lake to the Primary Children's hospital there. We LOVED our experience there. She had another EEG done there. Once again there was no evidence of infantile spasms. The only thing the doctor saw was a slight abnormality coming from the left side of the brain and everything else was normal. He explained that this could mean she has a tiny abnormality in that part of her brain that could be causing the seizures. He told us to continue her medication that she is on since she had been seizure free for five days. He wants to do an MRI within six months to see if anything shows up after her brain is a little more mature. But it was comforting to hear that is wasn't anything super major. He talked with us about options if this was something abnormal in her brain. Some suggestions were to first control the seizures by medication, if that didn't work there are steroid shots, diets, or surgery that could help. We are hoping she will continue to be free of seizures with medication so we don't have to put her through any of the other dangerous treatments. 

We love our little girl so much. She is the happiest baby. Even with everything she has gone through in the first part of her life she continues to grow and learn new things. She now scoots around and jabbers. We hope she continues to be seizure free and that we can find the cause and stop them permanently.

Some recent photos: